September 4, 2008
We have checked into the luxury suite at Texas Children's (they wanted us to take a whole floor, but we demurred and set up base in room 933) and have asked the concierge to schedule the seaweed wrap for both of us, which comes highly recommended by NB dad, Pat.
I guess it was worth it to walk Willie at 4:00 so that we could leave by 5:20 and get here by 7:50, just so we could watch Hogan's Heroes in the room, eat pizza, and not start chemo. Erin's nurse told me they were not that used to morning admits, so nothing was ready yet. We don't even have a bed in the room (which gives us a lot more room for our stuff).
I want to post this quickly and provide a fuller update later. Erin loves to see the comments you leave on the home page, but what she likes even more is receiving patient messages through the TCH system. They print these messages out on pretty cardstock and deliver them to the room. We use them to decorate by taping them up everywhere.
If you click here you can follow the instructions for sending a greeting: http://www.texaschildrens.org/parents/patientgreeting/default.aspx
This visit's theme (besides you best wishes) is to hear your favorite or least favorite memory/story from middle school or junior high.
Later. . .perhaps by then, we'll actually be attached to an IV pole.