May 13, 2008
It should surprise no one that a tumor produced by the brainy Erin would eventually outsmart its treatment plan. So it didn't shock us today that the CT scan showed that Erin's tumor has progressed, and we will now have to form a new plan. We've had a great run: 9 months on cyclophosphomide, 19 months on etoposide, and before that 9 months of the topless cyclone (topotecan/cyclophosphomide) without progression. If only the next rounds of treatment can match that!
We don't have a definitive plan yet (still in consultation with Dr. Russell), but I do know that Erin will have many fewer pills at her place at dinner tonight.
Oh Crap! and every other swear word in the book. Thinking of your whole family tonight. Erin has touched and inspired us so many times, I know she will continue to do so. I wish I had words to make it better.
ReplyDeleteMargot
I'm sorry to hear the bummer news. I had a feeling that Dr. Russell had a whole ration of bad news this week. We've got Erin in our prayers - she's our heroine!
ReplyDeleteLara
That just stinks!!! (being polite)
ReplyDeleteI am so impressed the treatment plans Erin has been on so far - I hope Dr. Russell will pull another easy and effective treatment plan out of her hat!
This damn frickin' disease. Erin's smile and attitude are only matched by her smarts, so I presume and hope that the outsmarting is only temporary. Thinking of Erin and you and the rest of your family, and hoping you come up with a plan that works (and if you happen to find one, please share)...
ReplyDeleteI hate NB!! I am so sorry to hear this news. Erin's story provided great hope to me after Carlie relapsed and I know it continues to be for many others. She is such an inspiration and know she has the strength to continue to fight this beast! Your family is in our prayers.
ReplyDeleteCharon Edgington
I am sorry...wish there were better words for me to say, but the ones I am thinking are not appropriate to write here!
ReplyDeleteErin is strong and I believe that her positive attitude will help to carry her body through the next stage of the battle.
Praying lots for Erin...and for you!
Rebecca
Hey guys - Tell that $%*&# tumor that I am mad now. It is hereby instructed to leave my horse buddy alone. I am praying for you all. Napoleon has offered to come bite it out.
ReplyDeleteJudy
I have complete faith in Dr. Russell's ability to pull another fine plan out of her hat! "Kaynahorah - ptuii, ptuii, ptuii"
ReplyDeleteEmma sends her love, hugs, and kisses! Give us a call soon!
I have been thinking about you guys lately. Erin is in my prayers! May the Lord bless your family with strength and healing!
ReplyDeleteAutumn
Hi guys
ReplyDeleteThat is not the news that we were looking for. We are praying for you guys!!!! we will beat the Hell out of this cancer!!!! It is my mission in life to distroy it. Talk to you soon
Tracy
Sorry to hear your news. Erin is such a beautiful and strong girl. We will be praying for strength for all of you and a great plan that will zap her back into NED. Love, The Morgans (SuperRyan)
ReplyDeleteYou all are in our prayers. Makes no difference if your child is 10 or 48 (as ours is), a diagnosis of cancer puts us all in the same boat!
ReplyDeleteCarolyn Johnson