Friday, August 29, 2008

Not a Superfecta

August 29, 2008

Dr. Russell's colleague Dr. Rachel Egler called me with Erin's scan results today. Her tumor is a little bigger, and there are some questionable lymph nodes in the area that weren't there before.
This seems to match what we observe clinically in Erin. . .progression but not terrible. Erin looks very well and doesn't complain about pain unless she is very active and putting her body under a lot of strain. Her labs yesterday looked quite good. We are prepared to move in a new direction (what that is, I couldn't say yet), and I think her body is also ready. Walter, Dr. Russell, and I (with Erin's input) just need to decide what happens next.

In the meantime, Erin had a great day at Jane Long today changing classes and seeing who she had in each class. We have tickets to the A&M-North Caroline soccer match at 6:00, but I think she is going to fore go them and head out of town for the weekend with her buddy, Jackson. Nothing like a weekend of fishing and outdoor play to take the sting out of getting to discontinue a medical regimen you didn't care for anyway.

In the meantime, keep sending good thoughts Hans's way. Sam and Will both got good news (good in the relapsed NB world, anyway), and Hans will have to wait for his until after Labor Day (and perhaps until after Gustav). I'm sorry we spoiled the superfecta, but we'll catch up in the next race.


  1. Oh, this is such a disappointment. I was stalking Erin's website for good news.

    I'm so sorry. But - like you said, this wasn't a regimen you were wild about. Lots of new hope that there is a great, new regimen out there that will be both more effective and easier on Erin and her action packed lifestyle!

  2. Well that just stinks! Keep moving along and hopefully you'll have a better, more tolerable treatment option for Erin. I used to wonder if I just didn't answer that ringing phone on "those" days, would it just all go away? Lexie is back at A&M for her last semester - she said the other day she was going to try again to swing by your office someday to hopefully meet you.
    Take care, Charon

  3. Darn! I'm so sorry. Hope you can manage a good "get outta dodge" weekend while switching horses.

  4. Max's dad said it all....... HUGE HUGS!!!!!!

  5. I am so mad at the nb for daring to show its face any bigger in your lives! looking for the docs to have a plan to knock it flat so it can trampled once and for all. From Vermont where we are wondering how to get to the Vt State Fair without our dog Sam (he could have Willie's brother) tearing up the kitchen floor again.
    Laura's mom

  6. I admire your family's "one day at a time" attitude and the fact that you don't fall apart during every situation where you would have every right to. Erin is a strong kid because of this, and we all know that she can make it through anything..I'm sure she even enjoys middle school!

  7. I am so sorry to read this news. I pray they find the right regimen to stop this in its tracks. Hugs and prayers. Carolyn Wing grandma to Laura Stage IV neuroblastoma page name LauraVDB

  8. I am so sorry to hear that the "easy" chemo isn't quite doing the job. I know you will find a new path and continue to live strong!

    Thinking of you- Caryn Franca

  9. I am so sorry to hear about this news. As always, Erin is in my thoughts and prayers.

  10. I am so sorry to hear about the report. I, too, was checking the site hoping for good news. Erin's in our prayers.

    I'm glad to hear that she had a good first day of middle school It's hard to believe so much time has passed!

    I have orders from Tiffany that they need to get together soon. I will be following up on that to check with your schedules.


    The Reeves Family